What families with ADHD and Autism need to thrive
Some parents said they were unsure what to expect after making a referral, while others felt well supported by individual professionals or schools. Post-diagnosis support was described as inconsistent, with several families relying on their own research or community organisations for guidance.
Experiences in schools also varied. Some families found staff understanding and helpful, especially where neurodiversity training had taken place. Others felt behaviours were misunderstood before diagnosis.
Community organisations and groups such as Family Hubs, KidsAware, and the Parent Carer Forum were praised for providing practical advice and peer support. But these services could be promoted more and information shared more widely to provide people with this valuable information. For this reason, we have created an information booklet to help with this.
One of the things we discovered by raising the concerns in these case studies is that our local system is ‘needs’ led. This means that people don’t have to get a diagnosis – or wait for one – to access support. This is a strength but local people need to know that.
The report recommends clearer information for families, more consistent pathways across health and education, and ongoing training for professionals. Healthwatch Wakefield will share these findings with local partners and monitor progress.
“There is a need to create consistent and clear information of the support available and the referral processes for families, GPs, schools, and community services. This information needs to be accessible for all, including those who are digitally excluded. There is a need to strengthen needs led support and signposting. There is a need to build on and continue to recognise parents and carers as essential partners in the child’s journey. There is a need to embed targeted, ongoing training on neurodiversity for professionals; and to canvas nationally for training to be universal in both education and social care training and education.
The purpose of a system is what it does, and families need more than assessments. They need a system that helps them stand tall, navigate the journey, and support their children to flourish.”
Lewis Smith-Connell, Chief Officer
This report shows the strength of families and the need for clearer, fairer, and more supportive pathways. A diagnosis is only one step; lasting change comes from better communication, consistent processes, and inclusive support that helps children and families thrive.
We would like to say a huge thank you to the families who shared their experiences and to all those working to improve support.
Thank you also to Summer, previously a Research and Engagement Officer with Healthwatch, who interviewed the families and identified themes; and thank you to other colleagues who completed the report and created the information booklet.
Find the report here:
More than a diagnosis: what families with ADHD and Autism need to thrive
Looking for support with the ADHD or Autism Journey for your child?
Our free guide brings together trusted organisations, local services, practical tools, and activities across Wakefield District — all in one place.
Whether you’re just starting out or looking for ongoing support, we’re here to help you find the right help at the right time.
Includes:
✔ Local and national support organisations
✔ Family Hubs and community groups
✔ Practical tools and wellbeing resources
✔ Things to do for children and young people
✔ Contact information you can trust
Download your copy today and feel more supported on your journey.
Information for families looking for support with the ADHD or Autism Journey
